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A Hearing Loss Journey

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A Hearing Loss Journey

While walking the dog, listening to the radio through my hearing aid and singing quietly to myself, I reflected upon my hearing loss ‘journey’.  In the summer of 2021, after having a virus for three weeks I suffered 60% hearing loss in one ear.  Alongside the loss I had very annoying tinnitus; for me this is a constant high-pitched ringing / buzzing noise.

My hearing loss was sudden, unexpected, shocking and disorienting.  Overnight my model of the world changed and I no longer felt I knew how the world worked.  When in new environments and talking to new people I found myself ‘missing’ bits of conversation and having to ask people to repeat themselves.  I could no longer confidently identify where sounds were coming from, especially those behind me, which confused me and initially left me feeling less safe.  In my new world of hearing loss, the impact of background noise, people not speaking clearly or speaking softly and not being able to see people’s lips all became challenges to be overcome.

Ironically I grew up surrounded by ‘deafness’.  My father suffered significant hearing loss when he had Scarlet Fever as a child in the pre-antibiotic era.  Prior to this his sister, born hearing, suffered complete hearing loss when she had measles as a child in 1924.  Growing up, I was encouraged to speak clearly and look at the face of the person with hearing loss. I watched as my aunt and her husband (also completely deaf) communicated with sign language.  I have never known my father to not wear hearing aids and am grateful that he benefitted from the ongoingly development of hearing aid technology.  Little did I know that being around people with impaired hearing was unconsciously teaching me to cope with my hearing loss when it happened.

However, despite having insight into the world of hearing loss, I never thought it would happen to me so suddenly, as my hearing was irritatingly good; my husband said I could literally hear a pin drop even when there was background noise!  My work has always involved spending large amounts of time speaking to people, and so not being confident about hearing what people were saying concerned me.

Hearing loss remains a significant, if somewhat ‘unseen’ disability.  The latest figures from the Royal National Institute for Deaf People (RNID) (ref:1 & 2) are that:

  • One in three adults in the UK are deaf, have hearing loss or tinnitus.
  • Over half the population aged 55 or more have hearing loss.
  • 80% of people over the age of 70 will have hearing loss.
  • People who are deaf or have hearing loss are twice as likely to experience mental health problems compared to people without hearing loss.
  • An estimated 1.2 million adults in the UK have hearing loss severe enough that they would not be able to hear most conversational speech.
  • 38% of people who think they may have a hearing loss have not spoken to a professional about it
  • An estimated 7 million adults could benefit from hearing aids but only about 2 million people use them

Working as a therapist I often use the phrase I treasured during training with The Quest Institute – “things are not supposed to be easy, just possible”.  Encouraged by others to show myself the compassion I show my clients, I allowed myself to mourn the loss of my acutely good hearing, whilst searching for my voice as someone with impaired hearing.

When working with clients it is often helpful to explore the idea of moving from an ‘external locus of control’, where it may feel that things are ‘happening to’ a person, towards a more grounded and centred ‘internal locus of control’ where someone chooses how to respond to situations.  This shift may be about our whole way of being but can also apply to individual issues; for me the shift was about how I interacted with the world and how I ensured my needs were meet as someone with hearing loss.

Hearing is an important part of brain health, and loss of hearing can lead to social isolation and depression.  There is ongoing research into the links between untreated hearing loss and the risks of developing dementia (3).  Cognitive Hypnotherapy recognises, and utilises, the concept of neuroplasticity; our brains ability to create new neural pathways and therefore find new ways of doing things.  Knowing my brain was capable of this type of adaptation gave me hope.

Once I adopted a more positive mindset to my hearing situation, I was not embarrassed about communicating my difficulties, and I sometimes still wear a badge to let others know that I need their help as my hearing aid is hidden by my hair.

At the start of 2023 I told my ENT consultant that it was the ‘year of the hearing aid’.  More tests followed and I could not have been happier to start wearing the device over my ear.  Not only could I hear better, but the hearing aid dampens the tinnitus while I am wearing it.  This coincided with a diagnosis of Otosclerosis; the virus had damaged the ‘stapes’ bone in my middle ear, which is what had caused my hearing loss.   

When I first experienced hearing loss, I was upset that I could not hear well enough to sing; when I tried, I sounded ‘off’, distant and strange.  I had not only lost some hearing capacity, I also felt I had lost my ‘voice’.  Interestingly, I subsequently came across the phenomenon of ‘acoustic levitation’; discovered by NASA, this uses powerful (yet silent) sound waves to trap objects mid-air (4).  Perhaps there was more to ‘sound’ than I realised!

Another discovery was Mandy Harvey, a singer/songwriter, who dreamt of being a choir director.  An infection when she was 18 years old led to the total loss of her hearing while she was studying music at college.  Her amazing hearing loss journey involved her teaching herself to sing again through feeling the vibrations of the music through the floor, using the muscle memory of her vocal cords and trusting her pitch. (5)

Elianna Gilead, who published research with Shmuel Arnon MD, (6) studied the effects of live music, wordless singing and rhythm upon babies in a neonatal intensive care unit in a Middle Eastern hospital.  They discovered that music worked well as an intervention that effectively enhanced communication within a culturally divergent population.  It also decreased stress and increased a sense of humanity in the intensive care unit setting.  Elianna views the voice as a bridge between our inner and outer worlds.  She noted that even humming one note can be soothing.  Humming was my first step toward singing again.  It not only got me used to hearing my sound in a new way but also seemed to ground and reassure me. 

My journey has given me greater insight into ‘sound’ and what having a ‘voice’ can mean.  During the day we silently talk to, and listen to, ourselves.  When working with clients, I love the moments when they verbalise for the first time something they have repeatedly said to themselves silently, and sometimes ‘hearing’ themselves say things aloud can lead to a significant change in their thinking. 

In the latest edition of the RNID magazine (Summer 2024), Jamie Lang, BBC Radio 1 presenter and tinnitus sufferer, spoke about realising that obsessing about the tinnitus noise is unhelpful and “as soon as you start accepting, that’s the road to freedom”.   Working with clients to reframe their situation, using their imagination, combined with self-compassion, can be hugely helpful.  I now recognise that my tinnitus, while annoying, can also be a helpful part of me; one to alert me when I’m over-tired or stressed, hopefully prompting me to take action sooner rather than later. 

So now as I sit with my father, who is also nearly blind, in his nursing home, I marvel at how he has coped with his hearing loss over the years, determined to communicate and now accepting that the staff might find talking to him hard because he often does not hear what they say. 

In the ‘International Week of the Deaf People’ whose theme this year is ‘Sign up for Sign Language Rights’, I wonder how learning British Sign Language (BSL) may have helped my father.  Inspired by all the hearing-impaired people I have known who found ways to live fully, makes me more determined to help people adjust to all sorts of challenges and losses, helping people find new ways of ‘doing’ and ‘being’, echoing the RNID slogan that being heard ‘does matter’.  In the meantime, my hearing loss journey continues.

“Healing is a constant practice, not the conclusion of a problem.”
Michael Meade

If my journey has resonated with you and you would like support to make adjustments to a situation you find yourself in, please get in touch with me to find out more about how therapy and coaching could help you.

Penny Ellison

www.longcroft-therapy.co.uk

07795 460487

@longcroft_therapy